Literally sticking two fingers up to CF
First of all, I would like to apologise that it has been a little over a week since my last post! I have been super busy! In the past two weeks I have been to Scotland, Wales and the Isle of Wight!
I went to Wales with my sister to pick up their new puppy, who is adorable, and I am currently on my way back from Scotland, as I went to see my brother for a couple days. Apart from dashing up, down and across the country, I managed to see all my friends from home when they were back on Easter Holidays and have been gyming almost everyday I’m at home.
The other weekend, I went down to Brighton to do some yacht race training with the Magenta project. The Magenta project are an organisation that are helping get more women into professional sailing and racing, who I will hopefully be doing some work for/with when I move to Uni. It was a great weekend, where I learnt the ropes (I couldn’t resist the pun) ready for racing at Easter down on the Isle of Wight. I say racing at Easter, but we ended up doing more sunbathing than sailing as there was no wind! However, it meant I had a fun weekend chilling with friends, my other brother and spent a reasonable amount of time sunbathing or in the pub! I did also learn a few things about yachting.
I also had a full check-up at the hospital last week, in which it turns out I managed to improve my lung function by 20% in two weeks without any additional medication! This really felt like one of those moments you turn around and stick two fingers up and go “yeah that’s right, f you! CF who?!” The fact that I improved my lung function that dramatically, shocked me and I honestly didn’t think was possible. Despite convincing my nurse two weeks earlier that if I got my lung function back to normal then they would let me not have IVs (intravenous antibiotics). To which she agreed…probably laughing and thinking I was delusional for even thinking I could improve it that much without antibiotics. This means the hospital are happy not to do IVs, hence how I have been able to come up to Scotland. Instead I am doing a one month course of oral antibiotics and 4 months of nebulised antibiotics. Personally, I would prefer to do these than a course of IVs, even though they are for a longer duration. I just hate IVs and would do almost anything to avoid them! Which means I will have gone around 18 months without IVs! This is the longest I’ve gone without them for probably around 10 years (definitely since primary school). Which is a pretty big achievement in itself!
I credit most of my good health and ability to improve my lung function (sometimes by large amounts in a reasonably small amount of time) to my sport. In the two weeks I boosted my lung function, I was going to the gym almost every day. At the gym I usually run between 2-5km and then do various weights/strength exercises (at the minute I’m doing a lot of upper body and back to get my climbing back to the standard it was before my ski season). I find running hugely improves and helps me maintain my lung function, as the impact when my feet hit the ground and the exercise in general is basically super boosted physio. Therefore, when I go to Greece I am aiming to run at least once a week (possibly more if I have the time).
I would also like to just say a huge thank you to anyone that has sent me messages. They mean a lot to me and make me want to continue and grow my blog. Some of your stories are truly amazing and I can’t believe the ways in which my blog and experiences are helping some of you! In the words of T.S.Eliot - ‘Only those who risk going too far, can possibly find out how far one can go.’